What are we doing?
In July 2017 we will be participating in the Mongol Rally, a two month long drive between London and Mongolia, spanning thousands of miles and taking us through a range of countries... in the most hopeless car we could find. We'll get lost, and there'll be break downs (not just the car), but we are determined, and hopefully that will carry us to the finish line.
Our reason for embarking on this foolish journey is to raise as much as we can for charity. First, Cool Earth, a charity that works alongside indigenous people to halt rainforest destruction. Rainforests are vital to our planets health, and their destruction plays a huge part in climate change. Cool Earth seeks to preserve and protect as much of the rainforests as possible, in partnership with the local people who live there.
In addition, we are raising money for Cystic Fibrosis Trust, a charity who aims to help people with cystic fibrosis by funding research and improving conditions for sufferers by supporting them and their families. Research is vital for exploring new treatments, and potentially improving people's lives. Cystic Fibrosis Trust provides funding into this research, and encourages more great minds into working in the field.
Almost a year ago, Chris’s niece Kaiya was spending weeks at a time in hospital, she has Cystic Fibrosis. Cystic Fibrosis is a genetic disorder that leads to a build-up of sticky mucus in the lungs, digestive system and other organs. Build-up of this mucus leaves her prone to chronic infections, for which only hours of physiotherapy helps, it interferes with digestion, leaving Kaiya to take, on average, 20 tablets a day just to get the necessary fats she needs to grow. Seeing how the regular hospitalisations were affecting the family Chris wanted to do something big to raise money for this cause, and that’s what has led to this page and the near impossible challenge.
As part of her ongoing treatment, Kaiya has to attend monthly reviews and bi-monthly checkups at Milton Keynes Hospital, with an additional 3 throughout the year depending on how many infections she gets. Every 6 months her Gastric Button needs changing, with the fluids in the button being replaced every 2 weeks. She has a port in her chest that connects straight into the vein to help with regular IV’s, this needs flushing every month as well. And an annual review in Oxford, all of these planned appointments mixed with her frequent hospitalisations means at 5 years old she has probably spent more time in hospital than any of us ever will.
In the UK there are more than 10,000 people suffering from Cystic Fibrosis, this page focuses on just one, but by telling her story we hope to raise money for research, awareness and support for as many as possible. It doesn’t take much, a recently approved drug has boosted her immune system, halving the infections she gets and potentially extending her life expectancy beyond 36. Hopefully with your support, more breakthroughs like this can lead to Kaiya and others like her leading a better life.
Who are we?
We are Nomad Skillz, three unwise adventurers, with no useful skill sets, sense, or relevant experience. What we do have is determination, a little bit of luck and a Nissan Micra.
The first £1000 we can raise will go straight to the charities; £500 to Cool Earth and £500 to Cystic Fibrosis Trust. After that, a third of everything will go to Cystic Fibrosis Trust, while the rest will be used for vital costs required for the expedition.