FoxG1 syndrome

FoxG1 syndrome

FoxG1 U.K. is set up by the parents of children who suffer from this syndrome. Each year £5000 is needed to keep the charity registered

We did it!

On 2nd Jul 2017 we successfully raised £401 with 51 supporters in 28 days

FoxG1 is a severe neurological disorder which our daughter and  25 other children suffer from  in the uk who all need  high levels of care. Part of the syndrome is epilepsy , microcephaly, dystonia , breathing /feeding problems and are frequently in hospital with uncontrollable seizures and infections. Our children are unable to talk and most can not sit up needing full on care. Most of our children have severe feeding problems and are tube fed and on a large number of medications. We are raising money for the charity in hope to one day find a cure or research into medications that can help our children. 


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