FoxG1 syndrome

FoxG1 syndrome

FoxG1 U.K. is set up by the parents of children who suffer from this syndrome. Each year £5000 is needed to keep the charity registered

£401 raised of £2,000 target 20 %
51 supporters 6 days left
This project is using Flexible funding and will receive all pledges made by 3:30pm 2nd July 2017

FoxG1 is a severe neurological disorder which our daughter and  25 other children suffer from  in the uk who all need  high levels of care. Part of the syndrome is epilepsy , microcephaly, dystonia , breathing /feeding problems and are frequently in hospital with uncontrollable seizures and infections. Our children are unable to talk and most can not sit up needing full on care. Most of our children have severe feeding problems and are tube fed and on a large number of medications. We are raising money for the charity in hope to one day find a cure or research into medications that can help our children.