FoxG1 is a severe neurological disorder which our daughter and 25 other children suffer from in the uk who all need high levels of care. Part of the syndrome is epilepsy , microcephaly, dystonia , breathing /feeding problems and are frequently in hospital with uncontrollable seizures and infections. Our children are unable to talk and most can not sit up needing full on care. Most of our children have severe feeding problems and are tube fed and on a large number of medications. We are raising money for the charity in hope to one day find a cure or research into medications that can help our children.