HELLO FRIENDS

AISLING WAS DIAGNOSED WITH PULMONARY HYPERTENSION AT THE AGE OF 13 AND OUR FAMILY LIFE WAS TURNED UPSIDE DOWN..WE HAVE NEVER RECOVERED FROM THE SHOCK AND SADNESS OF THE REALITY OF THIS TERRIBLE ILLNESS.AISLING HAS BEEN INCREDIBLE FROM DAY 1 AND HAS SHOWN IMMENSE STRENGTH AND RESILIENCE IN MANY WAYS.SHE HAS ALSO HAD MANY VERY LOW TIMES AND MANY MEDICAL INTERVENTIONS TO FACE.WHEN SHE WAS FIRST DIAGNOSED-DESPITE BEING SO ILL SHE NEARLY DIED-I HAD TO APPEAL 3 TIMES BEFORE SHE WAS AWARDED ANY DISABILITY BENEFITS-SHOCKING BUT TRUE.WHEN AISLING WAS 17 I SOMEHOW SCRAPED TOGETHER THE MONEY TO PAY FOR DRIVING LESSONS SO SHE COULD APPLY FOR A MOTABILITY CAR TO ENABLE A SEMBLANCE OF TEENAGE INDEPENDENCE..I HAVE NOT BEEN ABLE TO WORK SINCE AISLING'S DIAGNOSIS-SO COMPLEX HAVE HER HEALTH NEEDS BEEN SO MONEY HAS BEEN EXTREMELY TIGHT.AISLING STARTED STUDYING HISTORY AT SUSSEX UNIVERSITY IN SEPTEMBER 2014-SHE NEEDED TO STAY CLOSE TO HOME DUE TO HER COMPLEX NEEDS-SHE HAS BEEN SO COMMITTED TO HER STUDIES AND WHEN SHE PASSED HER DRIVING TEST 3 YEARS AGO AND COULD APPLY FOR A MOTABILITY CAR I SAW A MAJOR CHANGE IN HER-A GROWTH IN CONFIDENCE AND THE ABILITY TO HAVE SOME INDEPENDENCE.THIS HAS BEEN SO VITAL FOR AISLING'S WELLBEING.WE ALL SEE THE TERRIBLE THINGS THIS GOVERNMENT IS DOING TO THE NHS ,WELFARE BENEFITS AND ALL THE SERVICES THAT I-AND ,I KNOW ,ALL OF YOU HOLD DEAR.aISLING HAS BEEN RECEIVING DISABLED LIVING ALLOWANCE -THE MOBILITY ASPECT HAS PAID FOR HER CAR.DLA IS NOW BEING REPLACED BY PERSONAL INDEPENDENCE PAYMENT AND THE GOALPOSTS FOR BEING ELIGIBLE FOR MOTABILITY HAVE CHANGED-WE HAVE ALL SEEN THE APPALLING HEADLINES.AISLING IS LOSING HER CAR-FOR HER THIS MEANS SHE IS LOSING ANY INDEPENDENCE BUT ALSO JUST DOING HER LIFE WILL BE IMPOSSIBLE.SHE NEEDS A CAR TO GET  TO UNI AND GET AROUND CAMPUS AND AROUND BRIGHTON..SHE NEEDS OXYGEN IN HER CAR AT ALL TIMES AND HER PHYSICAL AND MENTAL HEALTH WILL SUFFER TERRIBLY IF SHE CANNOT DRIVE.I HAVE NOT ASKED FOR ANY HELP SINCE AISLING WAS DIAGNOSED-I HAVE TRIED TO MANAGE EVERYTHING SINGLE HANDEDLY..I CANNOT COPE ANYMORE AND REALLY NEED TO CALL ON ANY OF YOU WHO FEEL YOU WOULD LIKE TO HELP GET A REPLACEMENT CAR FOR AISLING.I KNOW AISLING WILL BE FOREVER GRATEFUL-AS WILL I,MANY THANKS EVERYONE XX

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